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About Us:


My Spina bifida crusade is a work in progress and was created by me in order to help raise awareness to this disabling birth defect. Right now, there are 166,000 People living in the United States with this condition, and without the proper education these numbers could become much himage007.jpgigher.

Spina bifida occurs within the first 28 days of pregnancy, even before a Woman may know shes pregnant. That is why every Woman of childbearing age should educate themselves about the importance of taking folic acid.

Studies have shown that Women who take 400 micrograms of folic acid daily, greatly reduces the chance of having a baby born with Spina bifida, by up to 70%. 

Despite these advances, many challenges still remain as we continue to strive foward in search of a direct cause. The United States Government must step up to the plate and increase the funding we so drastically need for research and the development of better treatments for all Americans living with Spina bifida.

I urge you to Write to your Congress Person asking them to join in the fight by becoming a member of the Congressional Spina bifia Caucus. The Caucus advances policies and programs to reduce and prevent suffering from Spina bifida and to promote quality-of-life programs that support people with Spina bifida so they can live fulfilling productive lives. Together, we can make a difference not only in the lives of those already living with Spina bifida but to assure a much brighter future for those yet to be born as well.


Email Congress Today:


Thank You,

 Disability Activist & American Poet,

Robert M. Hensel



Who Discovered Spina Bifida?
Spina Bifida was discovered by Professor Nicholas Tulp. It said that the first known case of Spina Bifida occurred over 12,000 years ago.





Funding History:


Charted historical Spina bifida funding!