About Us:


My Spina bifida crusade is a work in progress and was created by me in order to help raise awareness to this disabling birth defect. Right now, there are 166,000 People living in the United States with this condition, and without the proper education these numbers could become much himage007.jpgigher.

Spina bifida occurs within the first 28 days of pregnancy, even before a Woman may know shes pregnant. That is why every Woman of childbearing age should educate themselves about the importance of taking folic acid.

Studies have shown that Women who take 400 micrograms of folic acid daily, greatly reduces the chance of having a baby born with Spina bifida, by up to 70%. 

Despite these advances, many challenges still remain as we continue to strive foward in search of a direct cause. The United States Government must step up to the plate and increase the funding we so drastically need for research and the development of better treatments for all Americans living with Spina bifida.

I urge you to Write to your Congress Person asking them to join in the fight by becoming a member of the Congressional Spina bifia Caucus. The Caucus advances policies and programs to reduce and prevent suffering from Spina bifida and to promote quality-of-life programs that support people with Spina bifida so they can live fulfilling productive lives. Together, we can make a difference not only in the lives of those already living with Spina bifida but to assure a much brighter future for those yet to be born as well.


Email Congress Today: http://house.gov/


Thank You,

 Disability Activist & American Poet,

Robert M. Hensel





Funding History:


Charted historical Spina bifida funding!





 Shop online and help raise money for Spina bifida at the same time!!!

 Shop online at over 350 stores like Barnes & Noble, Gap, Office Max, 1-800-Flowers, REI, Orbitz, and more at www.buyforcharity.com/charity-mall! Or go to www.buyforcharity.com and click CHARITY MALL. Up to 40% of each purchase will benefit  Spina bifida if you choose My Spina bifida Crusade as your charity.